"Julia is a joy. She is just wonderful. I started a Special
year and we took 2 riders to the Iowa State competition. Julia won 2
all, a gold and a silver," says Larry Eggers, Julia's grandfather, his
Eighty riders competed in the Iowa Special Olympic Equestrian
rider being limited to two events. "I competed in the walk and western
with my quarterhorse, Boogie. Bringing home the gold medal and
silver medal was exciting," says Baxter.
During high school Julia took several photography classes. Her
blue ribbons at the 4-H fairs and she continues to enjoy photography today.
Julia is unable to do strenuous sports, she is very active and enjoys
hilly terrain where she lives, near the Mississippi River, and swimming.
also involved in Special Olympics cheerleading and bowling.
Julia and her grandparents recently returned from San Diego,
spent two weeks undergoing testing as part of Dr. Dohil's
study and Dr. Trauner's myopathy study. "It went fine.
enjoyed seeing all the animals at Sea World, the Wild Animal Park and
Diego Zoo," says Julia.
Diagnosed with cystinosis at age one, Julia started
and then cystagon when it became available. "She has taken
pretty much her whole life. Julia has not had a transplant. We are thankful
cystagon and have high hopes for further breakthroughs in research that
individuals taking less medication and taking it less often. Julia has been
eyedrops since she was 2 years-old," adds Eggers.
Julia has coped with a learning disability that involves short-term
Tutors assist her with a reading curriculum so that she can work on
this skill. She prefers stories about animals, especially horses.
to read has been a struggle. She learns best with special assistance
who can read her the material aloud. Julia was able to pass her
training test using this method and when the choice of answers were
aloud, she was able to select the correct answer," says Eggers.
Julia's reading difficulty is not related to cystinosis in any way,"
Julia and her friend, Savannah Smith, put together a 4-H project on
a Blue ribbon at the Iowa State Fair . A pediatrician with 14 years in the
viewed their presentation and told the girls he had never heard of
"Julia herself is helping to spread the word," adds Eggers.
Movies about animals are Julia's favorite type of film and working
what she loves best. "I am still riding my horses and I plan to
again next year, when the weather warms up," says Julia with much
Julia and her grandparents are looking for opportunities for her to
some capacity that does not require her to read information. "We don't
handicapped kids, we have special kids. Julia has great compassion for
If we can locate a job that involves animals and she can receive
instruction about her duties, she will contribute so much," says
have leads on related job opportunities, please contact the Cystinosis