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9th International Cystinosis Congress in Valencia, Spain - 30 June - 02 July 2016

at the beautiful Barcelo Valencia Hotel, 30 June - 02 July 2016. This conference is the largest and most diverse gathering of Cystinosis patients, their families and experts in the world. The opportunities to make lifelong friends abound and the latest updates in Cystinosis research will be presented by the medical experts. Known for its City of Arts and Sciences, among the attractions in Valencia are a planetarium, interactive museum, the oceanarium, and Valencia Cathedral.  More to come.






Delayed-release capsules - oral therapy for vital organs
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CYSTARAN™ The treatment of Corneal Crystals in Cystinosis Patients

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         What Is Cystinosis?

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          A Guide for Parents, Patients,
          and Healthcare Professionals: (5 MB PDF)
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Cystinosis: an Artists Inspiration

Oceans Of Life

Read more about Lee Knaus



The Pediatric Neurology Research Group at the University of California, San Diego (UCSD) is conducting a research study on "Outcome and Quality of Life in Adults with Cystinosis"

The Study involves an online questionnaire, and is looking for two groups of participants.

More Information »



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