We were honored to have Graham Lipkin, MD, serve as Conference Chair, for the 8th International Cystinosis, held July 24-26, 2014 Congress was at the Marriott Renaissance Hotel City Centre in Manchester, United Kingdom. The Congress was a huge success, with families from all over the world attending. We will announce the next Internation Conference very soon. Stay Tuned
Sigma-Tau Pharmaceuticals Launches Cystaran
For The Treatment of Corneal Cystine Crystal Accumulation in Patients
Learn More about Cystaran
The Pediatric Neurology Research Group at the University of California, San Diego (UCSD) is conducting a research study on "Outcome and Quality of Life in Adults with Cystinosis"
The Study involves an online questionnaire, and is looking for
two groups of participants.
More Information »